Hi! I’m Claire.
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Being one of the oldest patients living with LCHADD gives me the unique opportunity that I have most likely experienced the same hurdles and challenges that you are going through right now. learning to live with and manage LCHADD is unfortunately not a choice patients have, but is possible.
At In Good Company, I will always advise regular visits with your Metabolic team. Additionally, I want to work with you so you to have your own tool kit, your own problem-solving skills and your own confidence to manage your OWN care.
My hope is that by working with me you not only manage your daily life with LCHADD you succeed and win the life you want live with LCHADD.
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